Wisconsin's Virtual Scleroderma Support Group

Although we are based in Wisconsin, our virtual support group welcomes every Scleroderma patient from any location.

We meet on the 4th Thursday of the month at 5:30pm cst.  Our group is very informal and is made up of Scleroderma patients at various points of their journey.  We focus not only on acknowledging the challenges that Scleroderma causes, but also looking for solution based ideas to help navigate those challenges.

Once you register, you'll receive the login information for the meeting.  I hope you'll join us!

Caregivers Support Group

Caregiving for someone with a complex, unpredictable autoimmune disease like scleroderma can feel isolating, but you do not have to do it alone. This is a safe, confidential space where you can share your triumphs, vent your frustrations, and connect with others who truly understand the emotional and physical demands of your journey.

Caregiver Support Group: Meets virtually on the fourth Thursday of every month at 7:00 p.m. ET.

The National Scleroderma Foundation

Upper Great Lakes Chapter

National Scleroderma Foundation Initiatives

Upper Great Lakes Chapter Initiatives

Scleroderma - The First Year

The Scleroderma Book

Facing Scleroderma

A Guide for Patients and Their Families

Invisible

A Nurse-Turned-Patient's Resource to Living Well with Autoimmune Disease

Thursdays with Eugene

A Memoir of Living While You Think You're Dying

The Surprising Power of Joy: Reclaiming the Forgotten Fruit of the Spirit to Release Heaven's Atmosphere

The Unexpected Joy of the Ordinary

Choose Joy: Because Happiness Isn't Enough

Joyful, Anyway

Scleroderma 101 with Dr. Deanna Baker Frost

Scleroderma 101 with Dr. Maureen Mayes

Scleroderma 101 with Flavia Castelino, MD

Choosing Hop & Resilience Booklet

A book of quotes, affirmations and phrases shared by members of our Scleroderma community to help navigate challenging times.

Mindfulness in Motion: 4-7-8 breathing for anxiety | Ohio State Medical Center

Using the 4-7-8 breath can activate the vagus nerve, relaxing your mind and various organs throughout the body. Maryanna Klatt, PhD, director of the Center for Integrative Health at The Ohio State University Wexner Medical Center, shows how to use this simple breathing technique to calm anxiety effectively. This demonstration is part of the Mindfulness in Motion program, an evidence-based, eight-week course that Dr. Klatt created mixing weekly sessions and individual practice. Learn more about 4-7-8 breathing at https://go.osu.edu/CsW2

National Scleroderma Foundation Resource Center

Search for topics to learn more about Scleroderma

Mogil's Mobcast - A Scleroderma Chat

A Scleroderma Podcast! Anne is our Chapter state lead for Minnesota and also produces a weekly podcast about Scleroderma.  So many great interviews and resources to listen and learn from.

Sclero-What Adventures With Barb & Randine

Barb Heenan was diagnosed with Scleroderma when she was in her 20's. Thirty years later, she and Randine are here to educate you about scleroderma, but also to entertain. They go on adventures to show that living with Scleroderma does not mean you can't live a full and joy filled life.